Sunday, March 21, 2010

Hi there to all fellow Multiple Sclerosis partners. My husband J is living with MS, initially diagnosed about 15 years ago. He has relapsing-remitting MS and is currently struggling through what has probably been the worst remitting stage yet, struggling to keep his balance, and walking with a stick as support. He is 37 years old, and used to be a fit and healthy runner and swimmer.

We are blessed in that the aggressive progression of the disease has been relatively slow and I believe that it's due to our determination not to let the disease run our lives. We have two beautiful daughters who we have tried thus far to give as normal a life as possible, but who are now becoming old enough to notice that Daddy is not like all the other Dads in some ways.

I would love to share, offer support, and gain support from other MS partners, who I think at times are forgotten in the focus on the MS patient him/herself. It's not that as partners we feel sorry for ourselves, it's just that if we don't feel supported and understood, that our ability to help our partners may be affected due to years of giving exhausting support, assistance and unconditional love, while still trying to cope with the pressures of everyday life.

I'd love to hear from you! Take care.
Nix